I've been diagnosed with a rare form of muscular neuron disease similar to Lou Gehrig's Disease (ALS). Not much research on it. We are searching for specialists amongst the nurologists.
If it were just my legs, then atleast I could still drive the trusty AstroLander thru the mountains and even camp. But unfortunately , AHCD usually takes the hands and arms first, as seeming in my case so far.
Already sold my racing kayaks, and 2 outta my three mountain bikes. I'll ride my 5" full suspension bike as long as I can. Can't quite get myself to let go of my sea kayaks and white water boats yet...stupid, I know. My 2010 Gas Gas is too snappy for me too handle with the lack of precision control of my hands, so I'll put it up for sale too. The '05 is not quite as responsive so I can still get some rides in this winter and we'll see how that continues to go. The rides will be short because the colder it is, the quicker I lose function my right hand. And my right forearm has already atrophied to the point of getting a lot of arm pump and burning when riding ruff and fast terrain.
Building my van thru the wisdom of ASV was one of the most rewarding things I've ever done. It's taken Jen and I to some incredible places we didn't even know existed, we met many wonderful people along the way, and made some great lasting friendships . With AHCD, the body goes to Hell, but the mind stays relatively sharp for the duration, so i'll always be able to have and cherish the memories we made with the AstroLander.
Cheers to my friends here at ASV. See ya round...
